Progression

Wow. The past couple of weeks the disease has progressed.  We will talk about the progression in upcoming posts.  For those who are caregivers and think your loved one doesn't know what's going on, you would be wrong. They do.

Talking to Mom on the phone these past couple of weeks has become challenging for me and perhaps for her too.  Mom's thoughts are more jumbled, time and space are more fluid, and she misses me alot.  She will ask me multiple times (minimum of 3) when I am coming home.  Then we talk about what we will do when I am home.  Go to the movies, go shopping, go for walks, eat good food.

When she says something that doesn't make sense, she will laugh, or she will try to find a way for it to make sense.  It is as though she is trying to break a spy code, but has been given the wrong decoder ring.  Voyageur has been spending even more time with Mom, and we have home health care coming in more often.

Finding a good caregiver has been challenging.  Mom can't fire them (Only Voyageur can do that), but she can cause problems.  Mom has called the agency, called Voyageur, told the caregiver she can leave now.  It took us three tries (well kinda four), but Mom is good with who she has now.  Yesterday she gave the woman a hug when she left.

There are times I cannot believe the depth of grief, but the depth of love far surpasses any grief experienced. I not only experience a profound love for Mom, Voyageur, but for many more people I come in contact with.  Watching Mom grapple with words, trying to express herself, has opened my compassion for people in general.  We are all grappling with something in our lives, and sometimes are prickly to folks for no reason.  Funny, Mom's symptoms progress, love grows.  Kinda like the Grinch's heart.

Kickin' it back to you Voyageur :)
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50,000 Shades of Grey

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Inspiration